Women and Hemophilia B
A woman’s guide to talking with her hematologist about hemophilia B provides information to help you feel more confident discussing your symptoms. Download the guide now »
Thank you for telling us your story!
Now be sure to tell everyone else…
I nominated my Heroine of Hemophilia B
Heroines of Hemophilia B is a family of exceptional women with the strength to overcome limitations, and the compassion to help others.
Honor your Heroine of Hemophilia B
Share your story today!
Click the sharing icons below and let everyone know about these remarkable women
We’re proud to recognize Name as a Heroine of Hemophilia B
Welcome to the family, Name!
Heroines of Hemophilia B
Honoring the women who have fought against hemophilia B—either for themselves, or in the care and treatment of others.
-
Erica
Patient and mother of son with hemophilia B
“Erica is amazing. She makes sure her son is taken care of, and she makes sure she’s taken care of, too! Erica won’t let anything hold either of them back!”
-
Joel
Patient with hemophilia B
“When Joel warned her dentist about her bleeding disorder, they dismissed it as ‘anxiety’. Luckily, Joel knows how to stand up for herself. She is a fierce advocate for women with hemophilia B.”
-
Your Heroine
Do you know a special woman who deserves to be recognized as a Heroine of Hemophilia B?
-
Heidi
Patient with hemophilia B
“As a young woman, Heidi struggled with her bleeding disorder. She’d never known anyone with hemophilia B, let alone another woman. But she courageously decided—on her own—to take control over how she managed it.”
Tell us about the heroine in your life.
Here’s your chance to share the story of that special woman who either has hemophilia B, or has made a difference in the life of someone who has hemophilia B. Express your gratitude. Who knows, maybe she’ll end up featured here, so everyone else can see how wonderful she is!
Tell us about the heroine in your life.
Here’s your chance to share the story of that special woman who either has hemophilia B, or has made a difference in the life of someone who has hemophilia B. Express your gratitude. Who knows, maybe she’ll end up featured here, so everyone else can see how wonderful she is!
Support for women with hemophilia B
Discover how the support and care provided to women with hemophilia B has affected the lives of patients, their caregivers, and families.
In February 2020, Medexus Pharma, Inc. acquired Aptevo BioTherapeutics LLC.
The Facts
Among women who carry the gene for hemophilia B:
57% have heavy periods vs 9%-14% of the general population6
There exists twice the risk of prolonged bleeding from small wounds vs non-carriers7
21% reported spontaneous bleeding after trauma (small wounds) vs 9% of non-carriers7
A woman’s guide
Medexus Pharma worked with women who have hemophilia B to create a guide that focuses on how this condition affects women, girls, and their families. Download this guide today.
Download
Real patient stories
Listen in as real patients— including Heidi, Erica, and Joel—share their experiences with hemophilia B.
Watch Now
Before accessing this Free Trial Request Form, please provide us with a little information about yourself.
* Required fields