Gen IX

    The adventure of a lifetime from the Coalition for Hemophilia B

    Medexus Pharma is proud to be the sole sponsor of the popular Coalition for Hemophilia B Generation IX Project, a national program designed specifically for—and by—those living with hemophilia B. Led by Pat “Big Dog” Torrey and the team at GutMonkey, the Generation IX Project supports the hemophilia B community with a series of mentorship, advocacy, and leadership programs that challenge, educate, motivate, and empower participants to make positive changes in their lives and in their communities.

    Applications for the next Generation IX Project Program will open soon. Sign Up to stay informed about future Generation IX projects. And be sure to follow us at IX Nation on Facebook or connect with The Coalition for Hemophilia B for the latest program updates.

    Generation IX Project—Video Vault

    medexus

    Giving you an experience that’s anything but ordinary.

    At Medexus Pharma, our goal is to help people with hemophilia B by providing high-quality, specialized therapies, connecting with people to learn about their needs, and developing empowering programs that enrich peoples’ lives.

    Medexus B More™ Scholarship

    The 2023/2024 B More Scholarship application period is now closed. Sign Up to stay informed about future scholarship opportunities.

    B More

    This program just for people with hemophilia B helps deliver a brighter future.

    You’re doing remarkable things, and there are many more you want to do. Whatever they are, the Medexus B More Scholarship is designed to help.

    • Recipients receive a scholarship to use for any type of post-high school education
    • Scholarships cover undergraduate, graduate, doctoral, trade schools, and certifications in the United States. Enrollment can be part time or full time
    • Scholarships are awarded based on a number of criteria
    • There is no age limit

    Sign up to stay informed about the B More Scholarship or any of the Medexus community programs.

    Medexus’ resource programs are available to all eligible patients regardless of which factor IX product you use.

    B Active

    Practical and engaging speaker programs about being active, in your personal wellness and in your community.

    B Active

    Our B Active speaker sessions help enrich peoples’ lives with practical, informative, and engaging activities that help you “B Active” on a regular basis.

    Speak with your Hemophilia Territory Manager about attending an interactive talk in your area.

    Brave Is In Our Blood

    Join a history of heroes protecting the future of people with hemophilia

    Gain a unique perspective on a defining chapter of the hemophilia community’s history during the 70s and 80s in this rousing retelling that draws inspiration from some of history’s most famous warriors―the Spartans. With relatable anecdotes and real-world advice for how you can continue the call, this is one story that speaks to all generations.

    FACTOR IN the Family

    Women and girls can and do have hemophilia

    Women with hemophilia B don’t just face unique bleeding challenges—getting the right diagnosis and treatment can be an uphill battle. This program will help all community members advocate for girls and women who have a bleeding disorder, understand the obstacles the “carrier” label may bring, and discover why factor level alone may not dictate a woman’s need for treatment.

    Facing the Pain of Hemophilia

    Dealing with chronic pain and medication abuse

    As someone with hemophilia, you may experience physical pain every day. This program helps you understand the full impact that pain has on you and your family. You’ll discover useful tips to recognize potential pain medication abuse. And you’ll get details on complementary therapies that might help you better deal with pain.

    Using Fitness to Fight Back

    Discover how physical fitness may help create a powerful defense against injury for people with hemophilia. Learn how to safely utilize fitness components like flexibility, core stability, strength training, and body movements to help prepare your body for a healthy, active lifestyle.

    Rebuilding the Body With Diet

    Understand the components of food to help balance not only a plate, but an entire day’s nutrition. See how specific patterns in diet may impact areas affected by hemophilia. A healthy diet can be fun and affordable, and help to build a strong, resilient body.

    How Not to Marry Your Mother

    If you have hemophilia, is factor all it takes to cut the apron strings? Come and gauge your independence readiness. This interactive presentation will provide you with resources and self-management tools to help you with self-sufficiency and increased confidence.

    Medexus’ resource programs are available to all eligible patients regardless of which factor IX product you use.

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    Reference: 1. Data on file. Chicago, IL, Medexus Pharma, Inc.

    INDICATIONS AND IMPORTANT SAFETY INFORMATION

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    What is IXINITY?

    IXINITY [coagulation factor IX (recombinant)] is a medicine used to replace clotting factor (factor IX) that is missing in adults and children at least 12 years of age with hemophilia B. Hemophilia B is also called congenital factor IX deficiency or Christmas disease. Hemophilia B is an inherited bleeding disorder that prevents clotting. Your healthcare provider may give you IXINITY for routine prophylaxis, for on demand treatment to control bleeding episodes or when you have surgery.

    IXINITY is not indicated for induction of immune tolerance in patients with hemophilia B.

    IMPORTANT SAFETY INFORMATION for IXINITY

    • You should not use IXINITY if you are allergic to hamsters or any ingredients in IXINITY.

    • You should tell your healthcare provider if you have or have had medical problems, take any medicines, including prescription and non-prescription medicines, such as over-the-counter medicines, supplements, or herbal remedies, have any allergies, including allergies to hamsters, are nursing, are pregnant or planning to become pregnant, or have been told that you have inhibitors to factor IX.

    • You can experience an allergic reaction to IXINITY. Contact your healthcare provider or get emergency treatment right away if you develop a rash or hives, itching, tightness of the throat, chest pain, or tightness, difficulty breathing, lightheadedness, dizziness, nausea, or fainting.

    • Your body may form inhibitors to IXINITY. An inhibitor is part of the body's defense system. If you develop inhibitors, it may prevent IXINITY from working properly. Consult with your healthcare provider to make sure you are carefully monitored with blood tests for development of inhibitors to IXINITY.

    • If you have risk factors for developing blood clots, the use of IXINITY may increase the risk of abnormal blood clots.

    • Call your healthcare provider right away about any side effects that bother you or do not go away, or if your bleeding does not stop after taking IXINITY.

    • The most common side effect that was reported with IXINITY during clinical trials was headache.

    • These are not all the side effects possible with IXINITY. You can ask your healthcare provider for information that is written for healthcare professionals.


    For more information about IXINITY, please see full Prescribing Information, including Important Patient Information.

    You are encouraged to report adverse events related to Medexus Pharma products by calling 1-844-859-6675. If you prefer, you may contact the Food and Drug Administration directly. Visit www.fda.gov/medwatch, or call 1-800-FDA-1088.