Gallery of Remarkable Women
All of these women were nominated as Heroines of Hemophilia B by someone in their life. Each has shown remarkable courage, either in advocating for themselves, or through the care and treatment of others with hemophilia B.
Take a look. Read their stories. These are the faces of truly amazing women.
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Pioneering advocate for women with Hemophilia B
My mother had what has been described to me as a 'quiet grace'...
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My daughter, an athlete who shares Hemophilia B with her son
As a young female affected with Hemophilia B, she became a national collegiate medalist...
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My mother, my influence, my guide
Joel is my mother and someone who always made sure to be an amazing influence on my life...
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Friend, advocate, woman with Hemophilia B
Stormy has Hemophilia B as well, but she advocates for people in the Hemophilia B community...
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My mother was there for us
My heroine is my mother, she raised two boys with Hemophilia B...
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Honoring my sister with Hemophilia B
Joel has taken trauma and heartache and turned it into meaningful, purposeful action...
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We are bleeders, too
I am my own heroine because I am not only a patient, but I am a mother...
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My nurse makes it happen
My nurse is always with me, whether it's an emergency situation or surgery....
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Always lending a helping hand
Kirstin is an advocate for Hemophilia B...
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Support from the HTC team
She has gone out of her way, even off the clock, to help us with any questions...
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There for me every step of the way
My mom , she has been my rock. She is a carrier, just like myself...
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My wife, a fighter when it comes to Hemophilia B
Joel has had to fight all her life to make her health care providers understand...


The stories you see here have been submitted by visitors to IXINITY.com. They do not necessarily reflect the views of Medexus Pharma. Except for correcting obvious errors, and taking out things we cannot say, the stories of these heroines appear just as they were written.