Supporting the hemophilia B community

Mentors and mentees build leadership skills together in Oregon.

Young adults develop their personal leadership style in South Florida.

People with hemophilia B get financial help to further their education.

Practical, engaging speaker sessions about being active in everyday life.

Aptevo Therapeutics is a proud sponsor of the Generation IX Project.

The goal of the Generation IX Project is to teach young adults with hemophilia B specific skills that will help build a stronger sense of self and a better life.

Guiding the project is Patrick “Big Dog” Torrey, president and founder of GutMonkey. For over 15 years, Pat has been designing and running adaptable, relationship-centered adventure education programs for the bleeding disorder community.

See the Generation IX Project on Facebook

Participants said...
"By far the best program I've been a part of"1

"I'll always remember helping others overcome challenges and overcoming some myself"1

The Generation IX Mentorship Project

The Generation IX Project is an innovative mentorship program for teens and young adults. People with hemophilia B aged 14 to 30 work together as mentors and mentees to build the leadership and life skills they need to succeed.

  • Mentors aged 18 to 30 will receive leadership training that will serve them long after the program.
  • Mentees aged 14 to 17 receive guidance and support for a truly rewarding experience.

Generation IX Community Leaders Project

The Generation IX Community Leaders Project is an opportunity for young adults that live with hemophilia B to develop interpersonal skills and find their very own personal leadership style. Participants travel to South Florida and work as a group to overcome challenges that will equip them to become future leaders in the hemophilia B community.

  • Open to anyone living with hemophilia B who is aged 18 to 35
  • Participants will learn how to lead and become active members of the bleeding disorders community

GutMonkey will be leading the Project through a partnership with the Coalition for Hemophilia B and with support from Aptevo Therapeutics. Look for dates for the next session of the next Generation IX Community Leaders Project.

Aptevo B More Scholarship™

This program just for people with hemophilia B helps deliver a brighter future.

You’re doing remarkable things, and there are many more you want to do. Whatever they are, the Aptevo B More Scholarship is designed to help.

  • Recipients receive a scholarship to use for any type of post-high school education.
  • Scholarships cover undergraduate, graduate, doctoral, trade schools, and certifications in the United States. Enrollment can be part time or full time.
  • Scholarships are awarded based on a number of criteria.
  • There is no age limit.

2017/2018 applications have now closed. Sign up for updates
to learn when 2018/2019 applications open in early 2018.

Aptevo's resource programs are available to all eligible patients regardless of treatment.

Our B Active speaker sessions help enrich peoples’ lives with practical, informative, and engaging activities that help you “B Active” on a regular basis.

Speak with your Product Specialist about attending an interactive talk in your area.

Facing the Pain of Hemophilia

Dealing with chronic pain and medication abuse

As someone with hemophilia, you may experience physical pain every day. This program helps you understand the full impact that pain has on you and your family. You'll discover useful tips to recognize potential pain medication abuse. And you'll get details on complementary therapies that might help you better deal with pain.

How Not to Marry Your Mother

If you have hemophilia, is factor all it takes to cut the apron strings? Come and gauge your independence readiness. This interactive presentation will provide you with resources and self-management tools to help you with self-sufficiency and increased confidence.

Using Fitness to Fight Back

Discover how physical fitness can help defend against injury for people with hemophilia. Learn how to safely utilize fitness components like flexibility, core stability, strength training, and body movements to help prepare your body for a healthy, active lifestyle.

Rebuilding the Body With Diet

Understand the components of food to help balance not only a plate, but an entire day’s nutrition. Show how specific patterns in diet may impact areas affected by hemophilia. A healthy diet can be fun and affordable, and help to build a strong, resilient body.

Reconnecting the Mind and Body Through Fitness

The power of the mind is infinite. Learn how the power of the mind is suppressed through stress and activated through relaxation. Tap into this power by entering present moment awareness and discover how having a healthy mind can help you deal with obstacles caused by hemophilia to unleash your fitness potential and enhance athletic performance.

Our focus: Give you an experience that’s anything but ordinary.

At Aptevo Therapeutics, our goal is to help people with hemophilia B by:

Providing high-quality, specialized therapies for people with rare conditions

Connecting with people to learn about their needs

Developing empowering programs that enrich peoples' lives

Aptevo's resource programs are available to all eligible patients regardless of treatment.

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Reference: 1. Data on file. Berwyn, PA, Aptevo BioTherapeutics LLC.